the last column designates a test, procedure or

surgery

X

X

X

X

2/19/2004

Discharged from nursing home  (again)

2/7/2004

nausea gone, appetite back - back pain still there

2/7/2004

weighs in at 125.4# - goal is 140-150#

2/6/2004

wound measures 2 cm by 1+ cn bt .5 cm deep

2/3/2004

back to nursing home, MRSA not gone - pain, nausea, loss of appetite

1/23/2004

Jake discharged from nursing home

1/9/2004

MRSA again - skin-groin, back, abdomen - to hospital, then to nursing home

12/23/2003

at Abbott again, same symptoms

12/19/2003

at Abbott - severe pain in back and legs - burning pain

12/13/2003

wound measures 4x6.3 cm

12/9/2003

developed two more skin ulcers - ankle and hip - due to staying in bed so much

11/23/2003

severe muscle spasms in area of baclafen pump

11/17/2003

surgery - skin down to and including bone debridement

X

11/17/2003

vacuum suction wound care

10/25/2003

in bed about 21 hours a day

10/6/2003

in Abbott - MRSA UTI

10/6/2003

two butt skin ulcers, one down to bone

10/6/2003

weights about 125#

9/25/2003

UTI

8/9/2003

dysreflexia and abdominal pain

8/1/2003

Jake moves to assisted-living apartment

07/13/03

emergency ET tube - respiratory distress

X

6/19/2003

Jake is Foley-free!

5/23/2003

butt skin ulcer size of dime

5/20/2003

Mitrofanoff surgery

X

11/16/2002

chair seat broke - restricted to bed - has butt ulcer

11/15/2002

Jake has gallstaone

10/27/2002

Jake weight about 142#

10/27/2002

he has shed the ugly white braces

10/27/2002

experiences dysreflexia when put in bed

10/20/2002

PICC line insertion

X

10/20/2002

dizzy

10/17/2002

EGD - Jake got a pic of that

X

10/15/2002

MRSA is introduced into his life

10/10/2002

in the hospital w/UTI - high temp

10/1/2002

while eating suffered an injury to esophagus

6/6/2002

Courage Center detected slight tricep in right arm

5/15/2002

in the hospital - baclafen pump complication

5/1/2002

Jake to the Courage Center

3/23/2002

spiking high temps

2/17/2002

sick - nausea and vomiting

1/28/2002

cystoscopy - no stones

X

1/14/2002

major dysreflexia incident

1/13/2002

spasms seem to be under more control (at last)

1/7/2002

Jake was 'show and tell' at high school

1/6/2002

still has headaches

12/30/2001

headaches due to sudden discontinuation of valium

12/28/2001

Jake and Sue used the Hoyer :)

12/17/2001

surgery - insertion of baclafen pump

X

12/13/2001

headache from spinal injectin of baclafen

12/11/2001

trial injection of baclafen

12/8/2001

Jake got new laptop

12/7/2001

cystoscopy - bladder stones - some were zapped

X

12/7/2001

started getting outside help for daily cares

11/25/2001

digestive system problems since tummy tube was pulled

11/18/2001

experimenting with different spasm drugs

11/9/2001

tummy tube pulled

X

11/4/2001

skin infections both toes

11/4/2001

Jake broke his chair (again)

10/28/2001

experimenting with different spasm drugs

10/18/2001

UTI

10/14/2001

soft foods only

10/14/2001

the bacon incident

10/7/2001

digestive system problems from antibiotic

10/7/2001

feet would not flex while ranging - too long without ranging

10/2/2001

UTI

9/30/2001

sore throat, ear ache, grouchy

9/30/2001

prophylactic antibiotic

9/28/2001

trach hole sewed shut

X

9/25/2001

hole leaking again - NPO again

9/3/2001

Terri and Jake went to visit the Courage Center

9/3/2001

UTI

8/28/2001

urine dark and sludgy - many sleepless nocs for both Terri and Jake

8/28/2001

Jake given manual wheelchair

8/28/2001

Zanoflex - now on three spasm meds - Baclafen, Valium and Zanoflex

8/28/2001

Jake and I used the Hoyer - took a long time but we did it!

8/28/2001

Terri put Jake on the new sofa - he loved it!

8/28/2001

Terri put small dent in van.

8/28/2001

weighs 150#

8/22/2001

swallow study - he aced it! He can eat again.

X

8/22/2001

last PT/OT at Froedtert - stopped due to his spasms

8/22/2001

gastrostomy tube changed - blood seepage during the change - needs to see GI doc

X

8/5/2001

Dave and Jake to Brewer's game - 1st time alone

8/5/2001

sweat on lower back

8/5/2001

state fair

8/5/2001

Jake enjoyed a bite of cream puff and had oozing from neck (he's still NPO)

7/29/2001

Terri discovered sweat behind one of Jake's knees - first time below level of injury

7/29/2001

PT says Jake has regained small amt of triceps or is using biceps exceptionally well

7/29/2001

Baclafen dosage increased

7/25/2001

skin sensation right ankle

7/25/2001

ENT doc put Jake on NPO - tube feeding again (for 3 weeks)

7/22/2001

weighs 143#

7/22/2001

Jake puts himself NPO - drainage from neck hole increasing

7/19/2001

neck leaked

7/15/2001

weighs 140#

7/12/2001

Jake can 'legally' eat any foods he wants (started 09-14-00)

7/4/2001

Jake had neck bandage removed - too hot

6/27/2001

drainage hole is healed

6/24/2001

swallow study - he aced it! Jake is allowed to eat soft food.

X

6/22/2001

dysreflexia - at Shorehave - Foley

6/16/2001

Jake got chair wet at beach, not a good thing

06/15/01

cysto - no bladder stones but still has the kidney stones

X

06/15/01

Jake got a tummy Foley - now he can wear shorts

06/10/01

many leg spasms at noc

06/03/01

Jake's graduation

05/27/01

more spasms, increasing intensity - Baclafen full dose, and valium

05/19/01

WCTC evaluation

05/13/01

got the van

05/06/01

bronchitis again

05/06/01

Valium for the spasms

04/21/01

Jake fell out of his chair - pink-tinged goo from drainage hole

04/15/01

coughed at school, drove into wall and injured his foot and the wheelchair

04/15/01

osteopenia

04/15/01

dysreflexia - shoes too narrow

04/09/01

Jake stood up

04/09/01

weighs 131#

04/01/01

vision disturbance - needed food

03/25/01

dysreflexia

03/14/01

bug' discovered - on meds again

03/12/01

many spasms

03/12/01

dehydration/fever - admitted to Froedtert "lung infiltrate" pneumonia?

03/04/01

bronchitis - albuteral

03/02/01

cysto - bladder stone removal, zapped one big one - dysreflexia incident during procedure

02/25/01

weighs 130#

02/23/01

swallow study - Jake is swallowing 60-70%

X

02/22/01

IVP

X

02/20/01

discovered two other Froedtert sci patients have developed symptoms similar to Jake's (neck)

02/14/01

leg spasms, especially at night

02/14/01

baclafen, 1 tab every noc

02/11/01

dysreflexia - sweaty forehead, etc, etc - clogged Foley, Jake directed me in his care

02/04/01

Albanese's Roadhouse benefit

02/03/01

first 'shower' in the kiddie pool

01/23/01

Jake's first day back at school since his junior year

01/23/01

respiratory difficulties

01/22/01

cysto - he has both kidney and bladder stones

X

01/20/01

Jake had a bath - Dave carried him up stairs

01/18/01

Jake had a 'dry run' at school today

01/16/01

Jake and I visit the City Beach

01/11/01

dysreflexia - sweaty forehead, etc, etc - wrinkle

01/06/01

stopped the Ativan at night - sleep disturbed, leg position problems

01/06/01

dysreflexia =- wrinkle in shirt - cold clamy sweaty forehead, stomach ache

01/06/01

ulcer on lower back almost completely healed

01/06/01

bladder stones

01/01/01

Jake sat in a regular chair at Kathie's house

12/31/00

itching from Darvon if he takes 2 tabs every 4 hours instead of just one.

12/23/00

Jake receives a whoopie cushion

12/22/00

PICC line (finally) removed

X

12/21/00

ENT doc shortened drainage area, strengthening it, allowing for less distance, no pooling (saliva)

X

12/19/00

swallow study

X

12/12/00

skin ulcer on lower back - about 1" below waist - size of half dollar, full thickness

12/12/00

when Jake wakes up his pupils are not equal

12/12/00

pre-surg visit w/ENT doc

12/12/00

g-tube change at Froedtert

X

12/10/00

Jake sits up in bed alone

12/10/00

Foley irrigation has been daily, night and morning

12/03/00

dysreflexia - gutache, nausea, cold sweats, dry heaves, temp-96, blood pressure up - Foley

12/01/00

Jake on Title 19

11/30/00

Terri's employer dropped Jake's insurance

11/29/00

weighs 121#

11/22/00

trip to the dentist

11/20/00

ENT doc= autonomic nervous disorder 2nd to injury.. hindering the healing (esophagus)

11/14/00

dysreflexia - headache, sweating - clogged Foley

11/06/00

ramp built

11/06/00

cold/sweaty - (UTI?)

11/01/00

Jake came home - discharged!

10/28/00

Jake came home for the weekend.

10/25/00

suturing of esophageal tear did not hold - postponed swallow study for 2 weeks

10/21/00

order written to wear the cervical collar again.

10/21/00

first car transfer

10/19/00

respiratory difficulties

10/19/00

Jake has red finger and toe nails - with sparkles!

10/17/00

removal of plate from spine - bone erosion

X

10/17/00

sutures in esophageal tear by ENT (after Dr Rao found the hole)

X

10/17/00

partial closure of esophageal hole

X

10/14/00

ortho resident informs Jake he needs more surgery

10/13/00

weighs 113#

10/12/00

nausea

10/10/00

nausea

10/07/00

I did my first transfer

10/05/00

trach tube removed

X

10/05/00

weighs 111#

10/03/00

Prevacid and Zofran

10/02/00

nausea

09/28/00

nausea (pain meds - antibiotics - gunk from fistula

09/28/00

off Cipro, on Bactrim

09/28/00

PICC line insertion

X

09/27/00

weighs 104#

09/23/00

less nausea

09/19/00

nausea

09/19/00

and last, but not least... candida (yeast)

09/19/00

Jake 'non-compliant' with PT

09/16/00

continuous tube feeding started

09/15/00

swallow study

X

09/15/00

drain insertion into fistula / EGD

X

09/15/00

Reglan

09/14/00

nausea

09/14/00

RN discovered 'sore' on Jake's neck

09/14/00

Jake NPO

09/13/00

Terri was notified of a med change - they want to give him compazine-based drug!!!

09/11/00

UTI - staph

09/06/00

nausea

09/06/00

tube feeding started again

09/05/00

paxil

09/03/00

Terri did her first transfer

09/03/00

hair cut

09/03/00

nausea

08/29/00

yeast infection in throat from antibiotics (UTI)

08/27/00

nausea

08/27/00

Jake given Compazine - same reactions as last time he was given Compazine DUH

08/26/00

PT expressed surprise that Jake actually "vomited" because it was witnessed by RN

08/26/00

nausea

08/26/00

requested daily update on his meds

08/26/00

PT documents that Jake is 'non-compliant' in therapy

08/26/00

hostility begins

08/25/00

nausea and vomiting

08/24/00

extreme nausea

08/23/00

nausea and muscle spasms

08/22/00

trach popped out when Jake coughed - had to be put back in

X

08/22/00

new sleeping med - trazadone (nausea/vomiting/constipation/muscle tremors-spasms

08/22/00

new respiratory med - theophylline (nausea/vomiting)

08/22/00

nausea and vomiting

08/18/00

compazine - locked jaw, joints stiffened

08/16/00

weighs 118#

08/15/00

trach tube put back in

X

08/14/00

trach tube removed

X

08/10/00

UTI

08/06/00

given percocet - itching

08/02/00

new trach tube #6

X

07/26/00

new trach tube #7

X

07/23/00

collapsed lung

07/23/00

sore throat starts

07/22/00

swallow study

X

07/19/00

tracheostomy - vent dependant

X

07/19/00

gastrostomy

X

07/18/00

coded - CPR - cardiac arrest

X

07/15/00

ET tube insertion

X

07/14/00

thoracocentesis

X

07/13/00

paracentesis - collapsed lung

X

07/13/00

bronchoscopy - gram negative h. influenzae pneumonia

X

07/13/00

coded - CPR - bradycardia

X

07/13/00

feeding tube (mouth to stomach)

X

07/12/00

internal fixation devices at C3-C4-C5-C6 (back)

4 hr

07/11/00

removed bone fragments, internal fixation devices at C4-C5-C6 (front) w/bone graft from hip

6 hr